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Sangeetha L
Bringing awareness of lupus to the world to make the life of lupus warriors more meaningful 0 yorumlar
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A disorder of body

Hey hi.. here I'm to tell my story and also to bring awareness about a disease nooooooo disorder ... Yes a disorder.. How many people know the real difference of a disease and disorder?


Disease is a illness and a Disorder is a wrong functioning of you body like how your body gets disturbed and change due to autism , polio ..


Systemic lupus erythematosus, an autoimmune malfunction; when your immune attacks your good cells, body, organs and bring in diseases or problem to your body.


Your kidney, heart, brain, ovaries anything can get affected.


Not curable yet, only way to survive is monitoring and controling when sle flares and attacks; Doctors treat the flare and the new disease it brings in. something like covid but the pain we go through is daily and lifelong.


not just that ,how it feels to live with sle.


Morning sickness,unannounced illness for no reason,never ending joint pain, mood swings, depression,numbness in fingers, weight gain, weight loss, appearance changes,rashes, pigmentation, anaemic ,hair loss, stretch marks with skin thinning and ..


It feels like you are always pregnant- you have no way to plan it, abort it or control it.


The pain in doing a simple thing in life is equal to doing something by attaching weights all your joints - no eyes can see it, recognise it, appreciate it, know it's worth or understand it.


The fear - Any part of your body or organ can get affected for no reason.


Always with a bunch of medicines, regular doctor visit to know whether my friend is bringing in any gift, monthly blood tests or other test to analyse the activity, needles , tiredness .


A person with Sle will look nomal outside with a smile carrying all this inside because this is the way they live their normal life , since this is how the life is for them.


More than all the pain living around the people without awarness is what weight us more,even a person living close with the lupus patient cannot understand how the life is for them and question how long are you give this as a reason, or going to be sick because it cannot be seen outside.









06 Temmuz 2021 19:00 0 Rapor Yerleştirmek 0
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